Table of Contents
EDITORIAL
Transition from Pediatric to Adult Care
David Wood, John G. Reiss, Maria E. Ferris, Linda R. Edwards and Joav Merrick
REVIEW ARTICLES
Making Rheumtogrow: The Rationale and Framework for an Internet Based Health Care Transition Intervention
Peter Scal, Ann Garwick and Keith J. Horvath
Measuring Health Care Transition Planning Outcomes: Challenges and Issues
Cecily L. Betz and Kathryn Smith
The CART Model: Organized Systems of Care for Transition Age Youth and Adults with Developmental Disabilities
Clarissa Kripke, Mary Giammona, Alan Fox and Jim Shorter
Toward Evidence-based Health Care Transition: The Health Care Transition Research Consortium
Maria E. Ferris, David Wood, M. Ted Ferris, Peter Sim, Bruce Kelly, Arwa Saidi, Santi Bhagat, Kristi Bickford and Irene Jurczyk
ORIGINAL ARTICLES
Barriers and Facilitators to Implementing a Transition Pathway for Adolescents with Diabetes: A Health Professionals Perspective
Christine Price, Sally Corbett and Gail Dovey-Pearce
The Use and Usefulness of MyHealth Passport: An Online Tool for the Creation of a Portable Health Summary
Jesse Wolfstadt, Aviva Kaufman, Jordan Levitin and Miriam Kaufman
Current Practices for the Transition and Transfer of Patients with a Wide Spectrum of Pediatric-Onset Chronic Diseases: Results of a Clinician Survey at a Free-standing Pediatric Hospital
Susan M. Fernandes, Laurie Fishman, Joanne O’Sullivan-Oliveira, Sonja Ziniel, Patrice Melvin, Paul Khairy, Rebecca O’Brien, Romi A. Webster, Michael J. Landzberg and Gregory S. Sawicki
Journeying from Nirvana with Mega-mums and Broken Hearts: The Complex Dynamics of Transition from Paediatric to Adult Settings
Lynne Brodie, Jackie Crisp, Brendan McCormack, Valerie Wilson, Pauline Bergin and Catherine Fulham
Measurement of Medical Self-management and Transition Readiness among Canadian Adolescents with Special Health Care Needs
Tricia S. Williams, Elisabeth M. S. Sherman, Catherine Dunseith, Jean K. Mah, Marlene Blackman, John Latter, Ismail Mohamed, Daniel J. Slick and Nancy Thornton
Transitioning to Adult Care among Adolescents with Sickle Cell Disease: A Transitioning Clinic based on Patient and Caregiver Concerns and Needs
Robert D. Latzman, Suvankar Majumdar, Carolyn Bigelow, T. David Elkin, Mary G. Smith, Gail C. Megason, Priya Srivastava and Rathi Iyer
Implementation of the LIFEspan Model of Transition Care for Youth with Childhood Onset Disabilities
Shauna Kingsnorth, Sally Lindsay, Joanne Maxwell, Irina Tsybina, Hannah Seo, Colin Macarthur and Mark Bayley
A Hospital-wide Initiative to Support Medically Complex Adolescents and Young Adult’s Transition Experience: The Process of a Systems Approach to Transition in a Tertiary Care Setting
Michelle Forcier, Sarah Ahlm, Rebecca Boudos, Parag Shah, Shubhra (Sue) Mukherjee, Kathy Zebracki and Jill Weissberg-Benchell
Barriers to Transition to Adult Care for Youth with Intellectual Disabilities
Laura Pickler, Yvonne Kellar-Guenther and Edward Goldson
Web-based Learning: Is it an Effective Method for Educating Pediatric Residents about Transition to Adult Subspecialty Congenital Heart Disease Care?
Arwa Saidi, John Reiss, Petar Breitinger, Erik Black, Joseph Paolillo and Shelley Collins
Testing the Transition Preparation Training Program: A Randomized Controlled Trial
Cecily L. Betz, Kathryn Smith and Kristy Macias
Transition of adolescents with inflammatory bowel disease from pediatric to adult care: A survey of Dutch adult gastroenterologists’ perspectives
Renée M. Barendse, Daan Jaan de Kerk, Angelika Kindermann, Laurie N. Fishman, Richard J. Grand, Joep F. Bartelsman and Hugo S. A. Heymans