Table of Contents
Table of Contents
Preface
Introduction
Section One: General Aspects
Chapter 1. Utilization of technology in transition programs
(Mark A Applebaum, Erica F Lawson and Emily von Scheven)
Chapter 2. Toward evidence-based health care transition: The Health Care Transition Research Consortium
(Maria E Ferris, David Wood, M Ted Ferris, Peter Sim, Bruce Kelly, Arwa Saidi, Santi Bhagat, Kristi Bickford and Irene Jurczyk)
Chapter 3. Measuring health care transition planning outcomes: Challenges and issues
(Cecily L Betz and Kathryn Smith)
Chapter 4. The use and usefulness of MyHealth passport: An online tool for the creation of a portable health summary
(Jesse Wolfstadt, Aviva Kaufman, Jordan Levitin and Miriam Kaufman)
Chapter 5. Current practices for the transition and transfer of patients with a wide spectrum of pediatric-onset chronic diseases: Results of a clinician survey at a free-standing pediatric hospital
(Susan M Fernandes, Laurie Fishman, Joanne O’Sullivan-Oliveira, Sonja Ziniel, Patrice Melvin, Paul Khairy, Rebecca O’Brien, Romi A Webster, Michael J Landzberg and Gregory S Sawicki)
Free Download Available
Chapter 6. Clinician perceptions of transition of patients with pediatric-onset chronic disease to adult medical care: Comparing a pediatric facility integrated within an adult institution with a free-standing pediatric hospital
(Susan M Fernandes, Michael J Landzberg, Laurie N Fishman, Paul Khairy, Gregory S Sawicki, Sonja Ziniel, Patrice Melvin, Joanne O’Sullivan-Oliveira, Peter Greenspan and Ami B Bhatt)
Free Download Available
Chapter 7. Measurement of medical self-management and transition readiness among Canadian adolescents with special health care needs
(Tricia S Williams, Elisabeth MS Sherman, Catherine Dunseith, Jean K Mah, Marlene Blackman, John Latter, Ismail Mohamed, Daniel J Slick and Nancy Thornton)
Chapter 8. A hospital-wide initiative to support medically complex adolescents and young adults transition experience: The process of a systems approach to transition in a tertiary care setting
(Michelle Forcier, Sarah Ahlm, Rebecca Boudos, Parag Shah, Shubhra (Sue) Mukherjee, Kathy Zebracki and Jill Weissberg-Benchell)
Chapter 9. Social and family issues
(Jacqueline A Noonan)
Section Two: Specific Diseases
Chapter 10. Making rheumtogrow: The rationale and framework for an internet based health care transition intervention
(Peter Scal, Ann Garwick and Keith J Horvath)
Chapter 11. Barriers and facilitators to implementing a transition pathway for adolescents with diabetes: A health professionals perspective
(Christine Price, Sally Corbett and Gail Dovey-Pearce)
Chapter 12. Transition of patients with endocrinology disorders
(Manmohan K Kamboj, Donald E Greydanus, Lee A Bricker and Dilip R Patel)
Chapter 13. Transitioning to adult care among adolescents with sickle cell disease: A transitioning clinic based on patient and caregiver concerns and needs
(Robert D Latzman, Suvankar Majumdar, Carolyn Bigelow, T David Elkin, Mary G Smith, Gail C Megason, Priya Srivastava and Rathi Iyer)
Chapter 14. Web-based learning: Is it an effective method for educating pediatric residents about transition to adult subspecialty congenital heart disease care?
(Arwa Saidi, John Reiss, Petar Breitinger, Erik Black, Joseph Paolillo and Shelley Collins)
Chapter 15. Transition preparation training program and spina bifida
(Cecily L Betz, Kathryn Smith and Kristy Macias)
Chapter 16. Assessing the satisfaction of teens with kidney transplants who have attended an adolescent transition clinic
(Cheryl Belair, Jordan Gilleland and Sandra Amaral)
Section Three: Disabilities
Chapter 17. Barriers to transition to adult care for youth with intellectual disabilities
(Laura Pickler, Yvonne Kellar-Guenther and Edward Goldson)
Chapter 18. Implementation of the LIFEspan model of transition care for youth with childhood onset disabilities
(Shauna Kingsnorth, Sally Lindsay, Joanne Maxwell, Irina Tsybina, Hannah Seo, Colin Macarthur and Mark Bayley)
Chapter 19. The CART model: Organized systems of care for transition age youth and adults with developmental disabilities
(Clarissa Kripke, Mary Giammona, Alan Fox and Jim Shorter)
Chapter 20. Transition from child oriented to adult oriented healthcare for children with neurodevelopmental disabilities
(Dilip R Patel and Donald E Greydanus)
Section three: International Aspects
Chapter 21. Transition to adult care in an Australian context
(Katharine S Steinbeck, Lynne Brodie and Susan J Towns)
Chapter 22. Journeying from nirvana with mega-mums and broken hearts: The complex dynamics of transition from paediatric to adult settings
(Lynne Brodie, Jackie Crisp, Brendan McCormack, Valerie Wilson, Pauline Bergin and Catherine Fulham)
Chapter 23. Transition of adolescents with inflammatory bowel disease from pediatric to adult care: A survey of Dutch adult gastroenterologists’ perspectives
(Renée M Barendse, Daan Jaan de Kerk, Angelika Kindermann, Laurie N Fishman, Richard J Grand, Joep F Bartelsman and Hugo SA Heymans)
Section Four: Long Term Experience
Chapter 24. The Self-Management and Transition-to-Adulthood Program at the University of North Carolina: Lessons Learned (and Still Learning)
(Maria E Ferris, Michael T Ferris, Carolyn Viall, Heather D Stewart, Nicole Fenton, Cara Haberman, Edward A Iglesia, Lauren E Hancock, Dona H Harward, Donna Gilleskie, James O’Neill, Robert Imperial, Zion Ko, Mary H Benton, May Doan, Kristi Bickford, Randy Detwiler, Kenneth Andreoni, John D Mahan, Zachary Smith and Keisha Gibson)
Section Five: Acknowledgements
Chapter 25. About the editors
Chapter 26. Jacksonville Health and Transition Services (JaxHATS) and Center for Health Equity and Quality Research, UF College of Medicine-Jacksonville, Jacksonville, Florida
Chapter 27. About the National Institute of Child Health and Human Development in Israel
Chapter 28. About the book series “Pediatrics, child and adolescent health”
Section Five:
Index
