Rare Diseases: Prevalence, Treatment Options and Research Insights

Wanda Ramirez (Editor)

Series: New Developments in Medical Research
BISAC: MED022000

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This book provides new research insights on rare diseases. Chapter One reviews the use of patients’ registries as a key tool in rare disease management. Chapter Two discusses the worldwide experience with cytoreductive surgery (CRS) and hyperthermic intraperitoneal chemotherapy (HIPEC) for patients with rare abdominal and pelvic neoplasms with peritoneal metastases that should be evaluated for long-term benefit. Chapter Three explores the contribution of psychology-related research on Congenital Anomalies (CAs) from the analysis of international scientific literature.
(Imprint: Nova Biomedical)

Preface

Chapter 1. Patients' Registries as a Key Tool in Rare Disease Management
Tsonka Miteva-Katrandzhieva, Manuel Posada and Rumen Stefanov (Medical University Plovdiv, Faculty of Public Health, Department of Social Medicine and Public Health, Bulgaria, and others)

Chapter 2. Selective Management of Peritoneal Metastases from Rare Abdominal or Pelvic Malignancies
Paul H. Sugarbaker (Center for Gastrointestinal Malignancies, MedStar Washington Hospital Center, Washington, DC, USA)

Chapter 3. The Contribution of Psychology to Research on Congenital Anomalies (CAs): Computer-Aided Thematic Analysis of International Scientific Literature
Andrea Caputo (Department of Dynamic and Clinical Psychology, University “Sapienza” of Rome, Rome, Italy)

Index

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