Rare Diseases: Prevalence, Treatment Options and Research Insights
Wanda Ramirez (Editor)
Series: New Developments in Medical Research
BISAC: MED022000
Details
This book provides new research insights on rare diseases. Chapter One reviews the use of patients’ registries as a key tool in rare disease management. Chapter Two discusses the worldwide experience with cytoreductive surgery (CRS) and hyperthermic intraperitoneal chemotherapy (HIPEC) for patients with rare abdominal and pelvic neoplasms with peritoneal metastases that should be evaluated for long-term benefit. Chapter Three explores the contribution of psychology-related research on Congenital Anomalies (CAs) from the analysis of international scientific literature.
(Imprint: Nova Biomedical)
Preface
Chapter 1. Patients' Registries as a Key Tool in Rare Disease Management
Tsonka Miteva-Katrandzhieva, Manuel Posada and Rumen Stefanov (Medical University Plovdiv, Faculty of Public Health, Department of Social Medicine and Public Health, Bulgaria, and others)
Chapter 2. Selective Management of Peritoneal Metastases from Rare Abdominal or Pelvic Malignancies
Paul H. Sugarbaker (Center for Gastrointestinal Malignancies, MedStar Washington Hospital Center, Washington, DC, USA)
Chapter 3. The Contribution of Psychology to Research on Congenital Anomalies (CAs): Computer-Aided Thematic Analysis of International Scientific Literature
Andrea Caputo (Department of Dynamic and Clinical Psychology, University “Sapienza” of Rome, Rome, Italy)
Index
Related products
-
Quick ViewThe opening chapter of Antiphospholipid Antibodies (APLA): Types and Functions in Health and Disease is focused on the modern immunoassays for the determination of aPL in biological fluids. The principles of these methods will be described and the possibility of their applications for aPL analysis will be mentioned. Next, the authors examine antiphospholipid syndrome (APS),…
-
Quick ViewQuadriplegia is a consequence of cervical spinal cord injury resulting in the significant loss of physiological function; both sensory and motor. One key challenge of quadriplegia, which distinguishes this specific high level of spinal injury from other lower levels of injury, is that of thermoregulation. From a sensory perspective, there is reduced afferent information from…
-
Quick ViewAdvances in Environmental Research. Volume 63 opens with a study on carbonate crushed stone of the Saltykovskoye field in the Republic of Tatarstan, Russia, which is characterized by high water uptake. An impregnation process involving a solvent in its supercritical state is used for impregnating the crushed stone. Two petroleum products are considered as an…
-
Quick ViewWhat does it mean for a person to move from work to retirement? What characterizes this experience? The significant demographic, economic and socio-cultural changes that have taken place recently have also had an impact on ways of achieving full withdrawal from work. Retirement is a difficult transition in which people lose some material and psychosocial…
You have not viewed any product yet.
