Quality of Life and Intellectual Disability: Knowledge Application to other Social and Educational Challenges


Roy I. Brown, Ph.D. (Editor)
University of Calgary, Canada

Rhonda M. Faragher, Ph.D. (Editor)
Australian Catholic University, Dickson, Australia

Series: Disability Studies
BISAC: LAW031000

We all long for a life of purpose and fulfillment. Striving for high quality of life for us and those we care for is a powerful motivator. Many busy people dream of being lazy by a pool fanned by a soft summer breeze, but this does not last. A short time of rest and replenishment is quickly replaced by boredom and a sense of purposelessness. Quality of life is much deeper than material comfort, though this has a role. Sadly in our world today, many people live lives lacking in meaning and value: the unemployed, the underemployed, those with disabilities who would like to contribute to society but are deprived the opportunity. Their quality of life is not what it could be.

In this book, we have attempted to provide examples of how people face challenges, and the family members, professionals and care personnel who support them can be helped and supported through services working within a quality of life framework. The book provides a challenge to be addressed by the individual, their families, local communities, governments, international organizations and the society at large.

Table of Contents

Table of Contents



Section One: Theoretical Perspectives (pp. 1-2)

Chapter 1. Quality of Life in the Wider World. Challenges from the Field of Intellectual and Developmental Disabilities (pp. 3-18)
Roy I Brown and Rhonda M Faragher

Chapter 2. Quality of Life as a Change Agent (pp. 19-34)
Robert L. Schalock and Miguel Angel Verdugo (Hastings College, Nebraska, USA and others)

Section Two: Applications in Education (pp. 35-36)

Chapter 3. Applying the Principles of Quality of Life to Education (pp. 37-54)
Rhonda M Faragher, Carolyn Broadbent, Roy I Brown and Jill Burgess

Chapter 4. Enhancing Quality of Life: Teaching Children who Display Challenging Behaviors to Succeed (pp. 55-70)
Jill Burgess

Chapter 5. “Fail at Maths and You Fail at Life”: Learned Barriers to Equal Opportunities – Mathematics Anxiety and Quality of Life (pp. 71-88)
Sue A Wilson

Section Three: Families and Quality of Life (pp. 89-90)

Chapter 6. Family Quality of Life in Intellectual and Developmental Disabilities: A Support-Based Framework to Enhance Quality of Life in other Families (pp. 91-120)
Nina I Zuna, Ivan Brown and Roy I Brown

Chapter 7. Application of Quality of Life to Children with Intellectual and Developmental Disabilities who Experience Child Maltreatment (pp. 121-136)
Ivan Brown and Ann Fudge Schormans

Chapter 8. Worries about Children in Families with Complex Needs (pp. 137-152)
Morag McArthur and Rhonda M Faragher

Section Four: Applications in other Social Contexts (pp. 153-154)

Chapter 9. Enhancing the Quality of Life of Marginalized Populations through Employment (pp. 155-168)
Rosemary M Lysaght and Virginie Cobigo

Chapter 10. The Inclusive City through the Lens of Quality of Life (pp. 169-184)
Alice Schippers and Lieke van Heumen

Chapter 11. The Cascading Transition Model: Easing the Challenges of Transition Experienced by Individuals with Autism and their Support Staff (pp. 185-206)
Nehama T Baum and Meaghan Edwards

Chapter 12. Vision Impairment and Quality of Life: Issues from around the World (pp. 207-224)
Paul M Ajuwon and Ruth Bieber

Chapter 13. Health-Related Quality of Life (pp. 225-246)
Margaret R Kyrkou

Chapter 14. Quality of Life and Older-Aged Adults (pp. 247-264)
Nancy S Jokinen

Chapter 15. Incorporating the Concept of Quality of Life in Individual Support Plans (pp. 265-284)
Nuta Yisrael Shurack and Cynthia Roling

Section Five: Conclusions (pp. 285-286)

Chapter 16. Quality of Life: Four Under-Considered Intersections (pp. 287-298)
H. Rutherford Turnbull

Chapter 17. Inclusion and Quality of Life: Are We There Yet? (pp. 299-318)
Trevor R. Parmenter

Section Six: Acknowledgements (pp. 319-320)

Chapter 18. About the Editors (pp. 321-322)

Chapter 19. About the Authors (pp. 323-328)

Chapter 20. About the Book Series “Disability Studies” (pp. 329-330)

Section Seven: Index (pp. 331-332)

Index (pp. 333)


“If one is looking for an in-depth insight into the manifold aspects of the concept of quality of life, I would strongly commend the book Quality of Life and Intellectual Disability, for its encyclopaedic scope, perceptive contributions and immediate relevance to the field of intellectual disability. It merits an easily accessible place on the bookshelf of all practitioners who actively seek ways to enhance the quality of life of people with an intellectual disability.” – <strong>Dr. Robin Jackson, Visiting Research Fellow, Centre for Learning Disability Studies University of Hertfordshire, UK</strong>

“Learning how all people with disabilities can achieve the highest quality of life possible is the next great challenge. This book provides an exciting action plan to make it happen.” – <strong>Dr. Paul Pagliano, Associate Professor, School of Education, James Cook University, Australia</strong>

“…an encompassing text on the emerging topic of QOL and its relationship to individuals with a disability, their families, and the professionals that support them. This book can help contribute towards creating positive changes in today’s society.” – <strong>James Cairns, M.A., International Journal of Child Youth and Family Studi</strong>

“The book…. provides a very timely overview on the various key aspects of what are essential to an individual and their family that can lead to happiness and a feeling that one’s quality of life has been fulfilled..” – <strong>Seth M. Keller, MD, Co-Chair NTG, Past President AADMD</strong>

“This masterly summary of the application of Quality of Life research could not have been published at a more opportune moment, coinciding as it does with world-wide debates on making a reality of the new post 2015 Development Goals and the existing international Human Rights Conventions….” – <strong>Peter Mittler, Emeritus Professor of Special Needs Education, University of Manchester, UN consultant on disability and education</strong>

“The volume is rich in ideas and insights and gives due recognition to the importance of empirical evidence, as well as underlying values. It is well- organized and systematic in its treatment of the topic. I was particularly pleased to see Quality of Life being extended beyond disability to encompass a broad range of individuals, as well as families and systems. The book deserves to reach a wide audience.” – <strong>David Mitchell, Adjunct Professor, University of Canterbury, New Zealand</strong>


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