Practical Dementia Care for Adults with Down Syndrome or with Intellectual Disabilities


Series: Psychiatry – Theory, Applications and Treatments
BISAC: MED056000

Dementia in adults with Down Syndrome or with intellectual disabilities is a rapidly growing field of health and social care. There is, however, limited information available for families and health care providers on how best to manage associated behaviors and difficulties. This book is the first published book to provide day to day practical advice on how to care for a person with Down Syndrome or with intellectual disabilities who suffers from dementia. The book primarily emphasizes how best to cope with the clinical problems of dementia but also includes information on the epidemiology, common types of dementia and on the historical perspective of dementia in Down Syndrome and intellectual disabilities.

It discusses the wide range of physical, psychological, social and legal issues of the different levels of dementia from the time of diagnosis to the end of life. The book includes chapters on aggression, epilepsy, drug treatments and end-of-life issues. This book is aimed principally at family members and caregivers but is also recommended for professionals, including physicians, psychologists, nurses, health related therapists, working in the field of aging and intellectual disabilities. It supplements the more medically orientated textbooks on dementia in Down Syndrome or intellectual disabilities. It is an invaluable resource in this much neglected area of care provision. (Imprint: Nova)

Table of Contents

Table of Contents


About the Author

Chapter 1. Historical Perspective of Dementia in Adults with Down Syndrome and Intellectual Disabilities

Chapter 2. Overview of Dementia in Adults with Down Syndrome and Intellectual Disabilities

Chapter 3. Memory Loss

Chapter 4. Delirium

Chapter 5. Behavioural Issues

Chapter 6. Communication Difficulties

Chapter 7. Urinary and Faecal Incontinence

Chapter 8. Epilepsy

Chapter 9. Aggression

Chapter 10. Nutrition and Dysphagia

Chapter 11. Wandering

Chapter 12. Vision and Hearing Impairment

Chapter 13. Falls and Prevention

Chapter 14. Pressure Sores and Wounds

Chapter 15. Depression and Mood Swings

Chapter 16. Use of Medication

Chapter 17. Daycare and Long-Term Placements

Chapter 18. End-of-Life Care

Chapter 19. Role of Professionals and Services

Chapter 20. Seeking Help and Support from Services

Chapter 21. Other Advice and Support Issues

Chapter 22. Legal Issues




Additional Information

Audience: Professionals working with persons with Down syndrome. Down syndrome organizations. Of interest to carers and families of adults with Down syndrome.

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