Palliative Care: The Role and Importance of Research in Promoting Palliative Care Practices: Reports from Developed Countries. Volume 2

Michael Silbermann (Editor)
Middle East Cancer Consortium, Haifa, Israel

Series: New Developments in Medical Research
BISAC: HEA028000

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Special issue: Resilience in breaking the cycle of children’s environmental health disparities
Edited by I Leslie Rubin, Robert J Geller, Abby Mutic, Benjamin A Gitterman, Nathan Mutic, Wayne Garfinkel, Claire D Coles, Kurt Martinuzzi, and Joav Merrick

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The incidence of cancer is alarmingly increasing worldwide. The major problem that the medical profession is currently facing refers to “late presentation” patients who, for the most part, have reached the terminal stage of the illness. For these people, the only treatment option left is palliative care.

Various patterns of palliation have been in practice in every culture and in every ethnic group for generations. Unfortunately, we still lack significant and sustained investment in research related to the practice of palliative care. Authors from around the globe seek more investment of public and private funds to investigate ways to improve the bedside practice of palliative care. Modern palliative care concepts were established by Dame Cicely Saunders, from London, UK, right after World War II. It is only in the past 15 to 20 years that this new discipline started to develop in the developing world. However, we still lack the essential basic biological processes involved in relieving the suffering of cancer patients while receiving palliative measures throughout the trajectory of the disease.

This book owes its origins in large measure to physicians and nurses in 30 countries globally, who decided to devote their time, energy, compassion and goodwill, to the promotion of palliative care in their countries and communities, yet they lack solid evidence-based data to rely upon while extending their treatment to both patients and family members. The goal, in part, is to bridge the gap between scientists and clinicians from developed countries and those in developing countries.

We have been aware of the variances between cultures, traditions, beliefs and practices. I am continually struck by the seemingly diametrical views of “knowing” and cultures and the strong overlaps that might give rise to new ideas.

We hope that these new volumes will serve to inspire health professionals’ and administrators’ interests and appreciation for the investment in basic and clinical research that will serve to advance our understanding of the underlying physical and emotional factors involved while extending palliative care to patients suffering from cancer and other non-communicable illnesses.
(Imprint: Nova Medicine and Health)

Preface

Acknowledgements

Chapter 1. End-Of-Life Care in Persons with Severe and Persistent Mental Illness: A Review of the Research Outcomes
(Phyllis Whitehead, PhD, Senaida Keating, MD, Shereen Gamaluddin, MD, and Kye Y. Kim, MD, Department of Internal Medicine, Carilion Clinic and Virginia Tech Carilion School of Medicine, Roanoke, Virginia, US, and others)

Chapter 2. Beyond Quality of Life: An Approach to Complexity
(Lodovico Balducci, MD, Senior Member Emeritus, Moffitt Cancer Center, Tampa, FL, US)

Chapter 3. Using Evidence to Improve Palliative Care Practice
(Regina M. Fink, PhD, and Jeannine M. Brant, PhD, Associate Professor and Co-Director, Interprofessional Master of Science in Palliative Care Program, University of Colorado Anschutz Medical Campus, Anschutz, CO, US, and others)

Chapter 4. Research Tools and Approaches to Reduce the Suffering of Cancer Patients in Developing Countries
(Lidia Schapira, MD, and Karl Lorenz, MD, Stanford University, Stanford, CA, US, and others)

Chapter 5. Integrating Palliative Care in Non-Oncologic Patient Populations: The Case for Renal Supportive Care
(Emily Lu, MD, and Craig D. Blinderman, MD, Assistant Professor, Department of Nephrology and Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York City, NY, US, and others)

Chapter 6. Palliative Care Research: Increasing the Awareness, Delivery and Quality of Palliative Care
(Egidio Del Fabbro, MD, J. Brian Cassel, PhD, Division of Hematology, Oncology, and Palliative Care
Massey Cancer Center, Virginia Commonwealth University, Richmond, Virginia, US)

Chapter 7. Strategies for the Promotion of Home Palliative Care – What Is Still to Be Learned and How?
(Manuel Luís Capelas, PhD, Sílvia Patrícia Coelho, PhD, and Tânia dos Santos Afonso, Universidade Católica Portuguesa, Institute of Health Sciences, Lisbon, Portugal, and others)

Chapter 8. Coping with Death Competence in Pediatric Nurses
(Amparo Oliver, Laura Galiana, Noemí Sansó and Juan Manuel Gavala, Professor, Department of Methodology of the Behavioral Sciences, University of Valencia, Spain, and others)

Chapter 9. The Need for Research Oriented Psycho-Oncology in Palliative Care
(Simone Cheli, School of Human Health Sciences, University of Florence, Florence, Italy, and others)

Chapter 10. Palliative Care Service Provision and Outcomes in Low and Middle Income Countries
(Kennedy Nkhoma, Ping Guo, Eve Namisango and Richard Harding, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King’s College London, UK, and others)

Chapter 11. Global Palliative Care Development Research
(Stephen R. Connor, PhD, Executive Director, Worldwide Hospice Palliative Care Alliance, London, UK)

Chapter 12. Research Methods in Palliative Care
(Paz Fernández Ortega, PhD, and Julio C. de la Torre-Montero, PhD, Institut Català d’Oncologia, University of Barcelona, Faculty of Health Sciences, Barcelona, Spain, and others)

Chapter 13. Early Intervention of Palliative Care: An Innovative, Effective and Efficient Model of Care to Meet the Challenge of the Phenomena of Disease Chronication and Demographic Transition in the 21st Century. What Is the Situation in France?
(Rana Istambouly, Palliamed, Paris, France, and others)

Chapter 14. Medical Research in Palliative Medicine in Poland: The Bottom-Up versus the Top-Down Approach
(Zbigniew Zylicz MD, PhD, and Aleksandra Kotlińska-Lemieszek, MD, PhD, Institute of Experimental and Clinical Medicine, University of Rzeszów, Poland, and others)

Chapter 15. Early Palliative Care (EPC) Trials for Patients with Advanced Incurable Cancer: What Have We Learned and How Can We Improve Future Trials and Patients’ Care
(H. Charalambous and, A.P. Kassianos, Consultant Clinical Oncologist, BOC Oncology Centre, Nicosia, Cyprus, and others)

Chapter 16. The Role and Importance of Research in Promoting Pharmacological Management of Cancer Related Pain
(Elon Eisenberg, MD, Pain Research Unit, Institute of Pain Medicine, Rambam Health Care Campus, Haifa, Israel, and others)

Chapter 17. Research on What ‘Meaning’ Really Means for Cancer Patients near the End of Life: Findings from a Mixed Methods Study
(Adi Ivzori Erel, Lee Greenblatt Kimron and Miri Cohen, The Ruth and Bruce Rappaport Faculty of Medicine, Technion Israel Institute, Haifa, Israel, and others)

Chapter 18. Importance and Effect of Research Findings on the Outcome of Clinical Practice of Palliative Care
(Azar Naveen Saleem and Azza Adel Hassan, National Center for Cancer Care and Research, Hamad Medical Corporation, Doha, Qatar, and others)

Chapter 19. The Importance of Palliative Care Research in a Clinical Setting: Identifying Barriers and Implementation Strategies
(Tahani H. Al Dweikat, Sheikh Khalifa Medical City, Abu Dhabi, United Arab Emirates)
Chapter 20. Promoting Research and Practices in Palliative Care in an Islamic Middle-Income Country: Oman as an Example
(Zakiya Al Lamki, Pediatric Hematology and Oncology Unit, Department of Child Health, College of Medicine and Health Sciences, Sultan Qaboos University, Muscat, Sultanate of Oman)

Chapter 21. Palliative Care Nursing in Japan: Practice and Research
(Tomoko Majima, PhD, and Tomoko Otsuka, Graduate School of Nursing, Chiba University, Chiba, Japan)

Chapter 22. The Role and Importance of Research in Promoting Palliative Care Practice: Methods and Outcomes
(Paul A. Glare, Chair of Pain Medicine, Northern Clinical School, Faculty of Medicine and Health, University of Sydney, Sydney, AU, and others)

Index

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