Palliative Care: Perspectives, Practices and Impact on Quality of Life. A Global View: Volume 1

Michael Silbermann (Editor)
Middle East Cancer Consortium, Haifa, Israel

Series: New Developments in Medical Research
BISAC: MED043000

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This new book provides a new outlook on the practice of palliative care worldwide. All five continents are represented in this book by global leaders in this relatively new subspecialty. The chapters in the book re-emphasize the fact that in the 21st century, most patients in the world still lack this elementary tool to alleviate suffering – physical, and even more so, emotional and spiritual – which are so critical to people, especially when patients conditions become fatal.

An issue that comes up again and again from almost all parts of the world, regardless of religion and traditional backgrounds, ethnicities, beliefs or faith, refers to the critical lack of basic and advanced training for physicians, nurses, volunteers and the public at large. Healthcare professionals are currently not equipped with the principles of communication with both the patient and his/her relatives. These kinds of drawbacks have to be corrected immediately. Moreover, training courses, symposia and conferences do not require large amounts of funds and can be carried out in local countries and/or regions which share a common language, culture and faith. Each country needs to create a nucleus of local champions who would then take it upon themselves to educate as many people in their own countries with the support, guidance and encouragement of international organizations that are dedicated to this mission.

Almost all of the larger international institutions, e.g., the UN and WHO, preach for improvement of the current situation. Unfortunately, responses are extremely slow and not efficient. This book calls for the global health community to urgently respond and bring about a rapid change in a totally unjustified situation that still prevails in over three-quarters of the world.

Dedication

Foreword

Preface

Countries Represented in this Book

Part I. North America

Chapter 1. Palliative Care for Persons with Severe Mental Illness
Sheereen Gamaluddin, Senaida Keating, Ralph McKenzie, Kim Kye (Roanoke, VA, USA)

Chapter 2. Principles and Practice of Palliative Care across Different Age Groups and Cultures
Ann Berger, Bethesda, MD and Meaghann Weaver (Omaha, NE, USA)

Chapter 3. An Interdisciplinary Approach to Integrating Palliative Care: Steps for Success
Jeannine Brant, Billings, MT; Regina Fink, Aurora, CO; and Lisa Kennedy Sheldon (Boston, MA, USA)

Chapter 4. Beginning a Palliative Care Program: Start Small and Build
Abdul Rab Razzak, Fatima Rashed, Mohammed J Al Ghamdi, Samer Abushullaih, Krister Anderson, and Thomas Smith (Baltimore MD, USA)

Chapter 5. Indications for Parenteral Nutrition Support in Cancer Supportive Care: An Acknowledgement of Cultural Interplay in Decision-Making
Aminah Jatoi (Rochester, MN, USA)

Part II. Latin America

Chapter 6. Embracing Life Quality and Palliative Care for Little Pilgrims and their Families. A Thriving Culture of Care in South America
Eulalia Lascar and Eugenia Rodríguez Goñi (Buenos Aires, Argentina)

Chapter 7. Structuring a Palliative Care Service in Southern Brazil: Lessons Learned and How to Move Forward
Leonardo Botelho, Andre Brunetto, Porte Alegre, and Lucia M.M. dos Santos (Brasilia, Brazil)

Chapter 8. Current Challenges in Palliative Care Practice in Latin America and Prospects for the Future. Our Experience in Southern Brazil
Fernando Almeida, Andressa Azeredo, Lucia M.M. dos Santos and Gilberto Schwartsmann (Rio Grande do Sol, Brazil)

Part III. Western Europe

Chapter 9. Practical Perspectives in Palliative Care in the UK
Catherine D’Souza (Nottingham, UK)

Chapter 10. Awareness in Brazilian Palliative Care Professionals: Psychometric Study and Its Relation to Quality of Life
Amparo Oliver, Laura Galiana, Davide Piacentini-Genovart and Fernanda Arena

Chapter 11. Palliative Care Professionals’ Quality of Life: An Integrative, Systematic Review on Nurses’ Well-Being
Laura Galiana, Amparo Oliver and Noemi Senso (Ballearic Islands University, Spain, and others)

Chapter 12. Construction and Validation of Professional Quality Indicators for Hospices
Stefano Limardi, Gennaro Rocco and Alessendro Stievano (Rome, Italy, and others)

Part IV. Eastern Europe

Chapter 13. Barriers Towards Establishing Palliative Care in Eastern Europe, and Prospects for Improvements in the Future: Romania as an Example
Alexander Eniu, Cluj-Napoca, and Daniela Mosoiu (Brasov, Romania)

Part V. North Africa

Chapter 14. Palliative Care in Sudan: A Protracted Journey to Reduce Suffering and Improve Quality of Life
Nahla Gafer, Mohja Kha’ir Allah and Sr. Halima Ali (Medani, Khartoum, Sudan and others)

Chapter 15. An Example of an Active Palliative Care Service in a Developing Country: Our Experiences in the Gharbia Cancer Society, Egypt
Mohamed Hablas (Tanta, Egypt)

Part VI. East Africa

Chapter 16. Palliative Care: Kenya’s Current Profile and Prospects for the Future
Tayreez Mushani and John Weru (Nairobi, Kenya)

Part VII. West Africa

Chapter 17. Practical Perspectives in Palliative Care in Cameroon
Catherine D’Souza and Esther D. Bell, Douala (Cameroon, and others)

Part VIII. Central Africa

Chapter 18. An Example of Integration of Palliative Care Service in Africa’s Healthcare System – Strengthening Intervention at Kibagabaga Hospital in Rwanda Public Health System
Christian Ntizimira, Olive Mukeshimana, Scholastique Ngizwenayo, Eric Krakaeur, Mary Dunne and Esmaili Bahar (Kigali, Rwanda, and others)

Part IX. Middle East

Chapter 19. Experiences Associated with Developing Nationwide Palliative Care Services in the Community. What Can One Learn from Them for the Future?
Ezgi Sisek Utku, Ezgi Hacikamioglu, Murat Gultekin, and Bekir Keskinkiliç (Ankara, Turkey)

Chapter 20. The Current Status of Palliative Care in Iraq: Reality and Ambitions for the Future
Samaher A. Razaq, Amir Al-Darraji, Majid al-Saeed and Hatem Sabhan (Baghdad, Iraq)

Chapter 21. Palliative Care in Lebanon: Current Practices, and Perspectives for the Future
Michel Daher, and Myrna Doumit (Beirut, Lebanon)

Chapter 22. The Cypriot Model for Home-Based Palliative Care Service: Facts and Prospects
Yolanda Kading, Simon Malas, Antonis Tryhonos, Nicolas Philippou (Kolossi, Cyprus, and others)

Chapter 23. Hope, Grief, and Belief in an Immigrant Community: Ethiopian Jews in Israel
Lea Baider and Gil Goldzweig (Tel Aviv, Israel)

Chapter 24. Palliative Care Evolution in Jordan and Prospects for the Future
Rana Obeidat (Zarqa, Jordan)

Chapter 25. Palliative Care Initiative in a Developing Country: Palestine as an Example
Mohamed Khleif, Nidal Jebrini and Amal Dweib (Bethlehem, West Bank, Palestine)

Part X. Central Asia

Chapter 26. The Long and Winding Road Towards Quality Palliative Care in Kazakhstan
Gulnara Kunirova (

Almaty, Kazakhstan)

Chapter 27. Palliative Care in Afghanistan: A Case Study of a Culturally Sensitive Home Program in a Conservative Society
Mohammad Shafiq Faqeerazi and Abdul Tawab Saljuqi (Kabul, Afghanistan)

Part XI. Southwest Asia

Chapter 28. Palliative Care Perspectives and Practices in the Islamic Republic of Iran and Their Implications for Quality of Life in Patients
Maryam Rassouli, Azam Shirinabadi Farahani and Leila Khanali Mojen (Teheran, Iran)

Chapter 29. Palliative Care: Progress and Challenges in Pakistan
Rehana Punjwani, Muhammad Shamvil Ashraf, Aneela Abbas, and Durr E-Fatima Siddiqi (Karachi, Pakistan)

Part XII. Southeast Asia

Chapter 30. Palliative Care in Asian Countries: Current Practices and the Future Outlook
Wendy Wing Tak Lam, Tai-Chung Lam, and Richard Fielding (Hong Kong, China)

Chapter 31. Networked Neighbors to Heartening Hospices: The Exciting Journey of Palliative Care Development in India
Srinagesh Simha, and Naveen Salins (Mumbai, India)

Chapter 32. Palliative Care in Myanmar: Accessibility, Barriers, Capabilities and Prospects for the Future
Shu Mon, Aye Aye Naing, Wah Wah MyintZu and Hlwan Moe Han (Yangon, Myanmar, and others)

Part XIII. Far East

Chapter 33. Chinese Way of Breaking Bad News – An Integral Part of the Practice of Palliative Care to End-Stage Patients
Lili Tang (Beijing, People’s Republic of China)

Chapter 34. Progress and Future Perspective of Palliative Care in Japan
Daisuke Fujisawa (Tokyo, Japan)

Part XIV. Oceania

Chapter 35. Australia Contribution to the Development of Global Palliative Care
David Kissane, Clayton and Natasha Michael (Melbourne, Australia)

Chapter 36. Development of Pediatric Palliative Care Services in New Zealand
Karyn Bycroft, Emily Chang, Rose Drake (Auckland, New Zealand)

Index

Click here to read the book review by - Dr. David Butler, Retired Palliative Care Physician, Southampton, UK and Palliative Care Coordinator for PRIME Partnerships in International Medical Education

Audience: General practitioners, Family physicians, Medical Physicians, Oncologists, Pain specialists, Anesthesiologists, Pediatricians, Gyn physicians, Nurses, Psychologists, Social workers

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