Excelling in Life with Down Syndrome



Series: Disability and the Disabled – Issues, Laws and Programs

BISAC: MED000000

Target Audience: Professionals, families, paid carers of people with Down syndrome.

Life expectancy for adults with Down syndrome has dramatically increased over the last 100 years. Many people with Down syndrome are now living into their 60’s and 70’s. Further, there has been a marked social shift in people with Down syndrome no longer living in large impersonal institutions but now living in the community, often within their family homes or independently. Children are becoming literate and adolescents are acquiring professions and hobbies. This integration into society results in a higher quality of life. Many previously published textbooks have reviewed the medical and psychological conditions associated with Down syndrome. This book aims to highlight the more positive aspects of the life of people with Down syndrome. Fruitful examples, such as the Special Olympics, camping, arts, digital literacy and citizenship actions are included. The book presents early childhood interventions, transition of children to adults, experience with PALS programs, the role of positive behavior support and self-directed support, and finally optimal aging. The aim of this book is primarily to educate families, carers and professionals that people with Down syndrome can achieve excellent well-being in physical, mental and spiritual domains. One’s ability to maximize their own well-being is a human right which also reduces risks and costs associated with mental illness. We hope this book highlights the importance for children and adults with Down syndrome to be seen as valued citizens of their community and allows their voices to be heard.

Table of Contents


Chapter 1. In the Search for the Well-Being and Excelling in Life
(Flavia H. Santos – Assistant Professor, Ad Astra Fellow, UCD School of Psychology, University College Dublin, Dublin, Ireland)

Chapter 2. Early Childhood Intervention for Families of Children with Down Syndrome
(Maria A. Robles-Bello, Nieves Valencia-Naranjo, José A.Camacho-Conde and David Sánchez-Teruel – Department of Psychology, University of Jaen, Jaen, Spain, et al.)

Chapter 3. Becoming an Adult with Down Syndrome: Multiple Perspectives on Transition
(Robert M. Hodapp, Kelli A. Sanderson, Brittney L. Goscicki and Ellen G. Casale – Peabody College, Vanderbilt University Nashville, TN, US, et al.)

Chapter 4. PALS Programs: Changing Perspectives Through Inclusive Camp Experiences
(Jenni Newbury Ross – Co-Founder and Executive Director, PALS Programs, Doylestown, PA, US)

Chapter 5. Web Access Experiences of People with Down Syndrome
(Lucía A. Virgós, Luís R. Baena, Jordán P. Espada and Rubén G. Crespo – Universidad Internacional de la Rioja – UNIR La Rioja, Spain, et al.)

Chapter 6. Using Positive Behaviour Support and Active Support to Achieve a Good Quality of Life for People with Down Syndrome
(Edwin Jones and Sarah Leitch – Service Improvement and Research Lead, Learning Disability and Mental Health Service Delivery Unit, Glanrhyd Hospital, Pen-Y-Bont Ar Ogwr, Wales, et al.)

Chapter 7. Self-Directed Support for People with Down Syndrome
(Simon Duffy and Christopher Watson – The Centre for Welfare Reform, Bierlow House, Sheffield, UK, et al.)

Chapter 8. Sport in the Lives of People with Down Syndrome
(Jan Burns and Suzie Lemmey – Professor of Clinical Psychology, Faculty Research Director, Faculty of Sciences, Engineering and Social Sciences, Canterbury Christ Church University, Canterbury, Kent, UK, et al.)

Chapter 9. Optimal Aging for People with Down Syndrome
(J. Sisirak, B. Marks and S. Keller – HealthMatters Program (healthmattersprogram.org), Department of Disability and Human Development, University of Illinois at Chicago, Chicago, IL, US, et al.)


Additional information



Publish with Nova Science Publishers

We publish over 800 titles annually by leading researchers from around the world. Submit a Book Proposal Now!