Disability and Chronic Disease

Joav Merrick, MD, MMedSci, DMSc, (Editor)
Medical Director, Health Services, Division for Intellectual and Developmental Disabilities, Ministry of Social Affairs and Social Services, Jerusalem, Israel
Division of Adolescent Medicine, KY Children’s Hospital, Department of Pediatrics, Lexington, Kentucky, USA
National Institute of Child Health and Human Development, Jerusalem, Israel
Division of Pediatrics, Hadassah Hebrew University Medical Centers, Mt Scopus Campus, Jerusalem, Israel
School of Public Health, Georgia State University, Atlanta, Georgia, USA

Shoshana Aspler (Editor)
Chief Community Nurse, Health Services, Office Medical Director, Division for Intellectual and Developmental Disabilities, Ministry of Social Affairs and Social Services, Jerusalem, Israel

Mohammed Morad, MD (Editor)
Yaski Community Medical Center, Ben Gurion University of the Negev, Clalit Health Services, Beer-Sheva, Israel

Series: Disability Studies
BISAC: SOC029000

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Volume 10

Issue 1

Volume 2

Volume 3

Special issue: Resilience in breaking the cycle of children’s environmental health disparities
Edited by I Leslie Rubin, Robert J Geller, Abby Mutic, Benjamin A Gitterman, Nathan Mutic, Wayne Garfinkel, Claire D Coles, Kurt Martinuzzi, and Joav Merrick

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Once upon a time, pediatrics was involved with infectious disease and acute disorders, but a new pattern of morbidity has emerged. Social difficulties, behavioral problems, developmental difficulties, disabilities and chronic disease have become main parts of the scope of pediatric practice.

Among adults, multiple chronic disease is increasingly prevalent, whereas the prevalence of impairment and disability remain stable, but substantial and therefore, present day health professionals must be aware of disability and chronic disease. Just a few decades ago, children born with significant congenital anomalies or genetic and metabolic diseases perished at an early age and very few survived into their teens and even less into adulthood. Congenital heart disease, major errors in metabolism, cancer, cystic fibrosis and many other major diseases were fatal. Because of that, many physicians in adult primary care did not have the opportunity to see patients with these problems and thus were unable to learn how to care for them.

With major advancements in medical knowledge, technology, imaging techniques, surgical skills and pharmaceutical products as well as prosthetic devices, many of these patients now live much longer lives and sometimes even close to the average life expectancy for the country, at least in the developed world. With that, a new medical care challenge has been created and we have to take a life span approach. (Imprint: Nova Biomedical )

Introduction

Chapter 1. Disability and Chronic Disease
(Joav Merrick, Shoshana Aspler and Mohammed Morad, National Institute of Child Health and Human Development, and Office of the Medical Director, Health Services, Division for Intellectual and Developmental Disabilities, Ministry of Social Affairs and Social Services, Jerusalem and others)

Section One: Developmental Issues

Chapter 2. Teaching Young Mothers to Identify Developmental Milestones
(Katelyn M. Guastaferro, John R. Lutzker, Julie J. Jabaley, Jenelle R. Shanley and Daniel B. Crimmins, Center for Healthy Development, Georgia State University, Atlanta, Georgia, USA)

Chapter 3. Categorization Activities Performed by Children with an Intellectual Disability and Typically Developing Children
(Olga Megalakaki and Hanan Yasbek, Université de Picardie, Faculté de Philosophie, Sciences Humaines et Sociales, Chemin du Thil, Amiens, France)

Chapter 4. Don’t Tag Me Mentally Retarded as I am Normal
(Munir Moosa Sadruddin and Zaira Wahab, Hamdard Institute of Education and Social Sciences (HIESS), Hamdard University, Karachi, Pakistan and Faculty of Education and Learning Sciences and Faculty of Business Administration, Iqra University, Karachi, Pakistan)

Chapter 5. The Therapeutic Interventions in Cerebral Palsy
(Helayne Feferman, Janell Harro, Dilip R. Patel and Joav Merrick, Department of Pediatrics and Adolescent Medicine, Western Michigan University School of Medicine, Kalamazoo, Michigan, USA and others)

Chapter 6. Using VML (Verbal Motor Learning) Method Techniques in Treatment of Prosody Disorder due to Childhood Apraxia of Speech
(Elad Vashdi, Yael Center, Aloney Aba, Israel)

Chapter 7. Alertness in Children with Profound Intellectual and Multiple Disabilities
(Vera Munde and Carla Vlaskamp, Department of Special Education, University of Groningen, Groningen, the Netherlands)

Chapter 8. Modeling Water Therapy for Children with Cognitive Impairments
(Alessandro Pollini, BSD Design, Consulting and Research, Italy)

Chapter 9. Neuropsychology Findings and Pharmacological Treatment of Attention Deficit Hyperactivity Disorder
(Donald E. Greydanus, Gabriel Kaplan and Kevin M. Antshel, Department of Pediatric and Adolescent Medicine, Western Michigan University School of Medicine, Kalamazoo, Michigan, USA and others)

Chapter 10. Women Caring for Adults with Intellectual Disabilities
(Michelle Rowbotham, Monica Cuskelly and Annemaree Carroll, School of Education, University of Queensland, Brisbane, Australia)

Section Two: Chronic Disease

Chapter 11. Mindfulness Training and Chronic Tension-Type Headache
(Stuart Cathcart, Vanessa Barone, Maarten Immink and Michael Proeve, Centre for Applied Psychology, Faculty of Health, University of Canberra, Australia)

Chapter 12. Mindfulness Training and Inflammatory Cytokine Levels in Chronic Tension-Type Headache
(Stuart Cathcart, Chris Della Vedova, Maarten Immink, Michael Proeve and John Hayball, Centre for Applied Psychology, Faculty of Health, University of Canberra, Australia and others)

Chapter 13. Physical Therapy Management of Older Adults with Chronic Low Back Pain
(Katja Ehrenbrusthoff, Cormac G. Ryan, Patricia A. Schofield and Denis J. Martin, Health and Social Care Institute, Teesside University, Middlesbrough, United Kingdom and others)

Chapter 14. The Long-Term Effectiveness of Pain Management Programs
(Laura Chipchase, David Sheffield and Patrick Hill, Multidisciplinary Pain Service, Birmingham Community Healthcare NHS Trust and Centre for Psychological Research, University of Derby, Birmingham, United Kingdom)

Chapter 15. Impact of Oxygen Therapy in Patients with Advanced Lung Disease
(Kaitlin Koo, Justin Kwong, Janet Nguyen, Florencia Jon, Liang Zeng, Kristopher Dennis, Lori Holden, Shaelyn Culleton, Luluel Khan, Amanda Caissie and Edward Chow, Rapid Response Radiotherapy Program, Department of Radiation Oncology, Odette Cancer Centre, Sunnybrook Health Sciences Centre, University of Toronto, Toronto, Ontario, Canada)

Chapter 16. Autogenic Training in Patients Treated for Chronic Headache
(Gisèle Pickering, Christel Creac’h, Françoise Radat, Jean-Michel Cardot, Jean-Pierre Alibeu, Gilbert André, Sylvie Chaib, Ludovic Douay, Françoise Hirsch, Véronique Malochet, Malou Navez, Pascale Picard, Eric Serra, Marc Sorel, Estelle Simen, Anne-C Sergent, Claude Dubray and Bernard Laurent, CHU Clermont-Ferrand, Centre de Pharmacologie Clinique, Clermont-Ferrand, France and others)

Chapter 17. Postural Control and Changes with Ageing and Exercise
(Zachary Crowley, Pedro Bezerra and Shi Zhou, School of Health and Human Science, Southern Cross University, Australia and others)

Chapter 18. Updates in Self-Concept, Self-Esteem and Self-Worth in Children with Health Conditions
(Betty V. DeBoer and Greta von der Luft, Department of Psychology, University of Wisconsin-La Crosse, La Crosse, Wisconsin and Physical Therapy Program, MCPHS University, Worcester, Massachusetts, USA)

Chapter 19. Dignity and War Disabled Veterans
(Zdravka Leutar and Tihana Jašarevic, Department of Social Work, Faculty of Law, University in Zagreb, Zagreb, Croatia)

Section Three: Transition to Adult Care

Chapter 20. The Self-Management and Transition to Adulthood Program “UNC STARx
(Maria E. Ferris, Michael T. Ferris, Carolyn Viall, Heather D Stewart, Nicole Fenton, Cara Haberman, Edward A. Iglesia, Lauren E. Hancock, Dona H. Harward, Donna Gilleskie, James O’Neill, Robert Imperial, Zion Ko, Mary H. Benton, May Doan, Kristi Bickford, Randy Detwiler, Kenneth Andreoni, John D. Mahan, Zachary Smith, Keisha Gibson and Steve Hooper, University of North Carolina Kidney Center, Chapel Hill, North Carolina, USA and others)

Chapter 21. Clinician Perceptions of Transition of Patients with Pediatric-Onset Chronic Disease to Adult Medical Care
(Susan M. Fernandes, Michael J. Landzberg, Laurie N. Fishman, Paul Khairy, Gregory S. Sawicki, Sonja Ziniel, Patrice Melvin, Joanne O’Sullivan-Oliveira, Peter Greenspan and Ami B. Bhatt, Harvard Medical School, Boston and the Massachusetts General Hospital for Children, Boston, Massachusetts, USA)

Chapter 22. Assessing the Satisfaction of Teens with Kidney Transplants
(Cheryl Belair, Jordan Gilleland and Sandra Amaral, Department of Transplant Services, Children’s Healthcare of Atlanta, Atlanta, Georgia, USA and others)

Section Four: Acknowledgements

Chapter 23. About the Editors

Chapter 24. About the National Institute of Child Health and Human Development in Israel

Chapter 25. About the Book Series “Disability Studies”

Section Five: Index

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