Table of Contents

Introduction

Chapter 1. “Can‟t We Talk about This When I‟m Ready to Transfer?” The Long Process of Transition
(Laurie N. Fishman, M.D.)

Chapter 2. “Let‟s Have Johnny Answer First” Educating Parents to Play a Supportive Role
(Laurie N. Fishman, M.D.)

Chapter 3. “What Else Do You Want Me to Do?” Participating in Provider Visits
(Laurie N. Fishman, M.D.)

Chapter 4. “What‟s the Name of the Red Pill?” Medication Regimens and Responsibility
(Laurie N. Fishman, M.D.)

Chapter 5. “Can You Explain That Again?” Understanding the Medical Condition
(Susan M. Fernandes, LP.D., P.A.-C)

Chapter 6. “Mom, Can You Call the Doctor?” Communication between Visits
(Laurie N. Fishman, M.D.)

Chapter 7. “I‟m Taking Next Semester in Peru” Healthcare at a Distance
(Laurie N. Fishman, M.D.)

Chapter 8. “Does It Really Matter If I Eat This?” Managing Medical Dietary Restrictions
(Laurie N. Fishman, M.D.)

Chapter 9. “She Can‟t Even Tell You What Hurts” Challenges Unique to Cognitive Delay
(Kitty O’Hare, M.D.)

Chapter 10. “But how do I Find a New Doctor?” Selecting and Connecting with the Adult Provider
(Sarah N. Flier, M.D. and Laurie N. Fishman, M.D.)

Chapter 11. “What If We Start to Cry?” The Farewell Visit and Beyond
(Laurie N. Fishman, M. D.)

Chapter 12. “Doc, Can You Write a Letter to Help Me?” Navigating Rights and Advocacy with Young Adult Patients
(Janis H. Arnold, LICSW)

Resources

About the Authors

Index