Are Your Pediatric Patients Ready for Adult Health Care? What to Do and How to Do It

Laurie N. Fishman, MD (Editor)
Childrens Hospital Boston, Boston, MA, US

Series: Health Care in Transition
BISAC: MED078000

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When is the right time to discuss moving to an adult medical provider? How do you prepare adolescents to take over their own medical care? What do you say at the farewell visit? Pediatric providers know these are important questions but don’t know where to find answers. Medical societies have written statements and guidelines outlining the importance of guiding young people from pediatric to adult medical care. Yet there are few practical instructions for pediatric providers on exactly how to accomplish this important task. This is the first book written for the busy practitioner outlining specific suggestions or “take-aways” that can be quickly incorporated into practice. (Imprint: Novinka)

Introduction

Chapter 1 - “Can’t We Talk about This When I’m Ready to Transfer?” The Long Process of Transition (pp. 1-6)
Laurie N. Fishman (Boston Children’s Hospital, Assistant Professor of Pediatrics, Harvard Medical School, Boston, MA, US)

Chapter 2 - “Let’s Have Johnny Answer First” Educating Parents to Play a Supportive Role (pp. 7-12)
Laurie N. Fishman (Boston Children’s Hospital, Assistant Professor of Pediatrics, Harvard Medical School, Boston, MA, US)

Chapter 3 - “What Else Do You Want Me to Do?” Participating in Provider Visits (pp. 13-16)
Laurie N. Fishman (Boston Children’s Hospital, Assistant Professor of Pediatrics, Harvard Medical School, Boston, MA, US)

Chapter 4 - “What’s the Name of the Red Pill?” Medication Regimens and Responsibility (pp. 17-24)
Laurie N. Fishman (Boston Children’s Hospital, Assistant Professor of Pediatrics, Harvard Medical School, Boston, MA, US)

Chapter 5 - “Can You Explain That Again?” Understanding the Medical Condition (pp. 25-28)
Susan M. Fernandes (Lucile Packard Children's Hospital Stanford, Stanford University, CA, US)

Chapter 6 - “Mom, Can You Call the Doctor?” Communication between Visits (pp. 29-34)
Laurie N. Fishman (Boston Children’s Hospital, Assistant Professor of Pediatrics, Harvard Medical School, Boston, MA, US)

Chapter 7 - “I’m Taking Next Semester in Peru” Healthcare at a Distance (pp. 35-40)
Laurie N. Fishman (Boston Children’s Hospital, Assistant Professor of Pediatrics, Harvard Medical School, Boston, MA, US)

Chapter 8 - “Does It Really Matter If I Eat This?” Managing Medical Dietary Restrictions (pp. 41-46)
Laurie N. Fishman (Boston Children’s Hospital, Assistant Professor of Pediatrics, Harvard Medical School, Boston, MA, US)

Chapter 9 - “She Can’t Even Tell You What Hurts” Challenges Unique to Cognitive Delay (pp. 47-54)
Kitty O’Hare (Boston Children’s Hospital and Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, US)

Chapter 10 - “But how do I Find a New Doctor?” Selecting and Connecting with the Adult Provider (pp. 55-62)
Sarah N. Flier and Laurie N. Fishman (Harvard Medical School, Boston, MA, US)

Chapter 11 - “What If We Start to Cry?” The Farewell Visit and Beyond (pp. 63-72)
Laurie N. Fishman (Boston Children’s Hospital, Assistant Professor of Pediatrics, Harvard Medical School, Boston, MA, US)

Chapter 12 - “Doc, Can You Write a Letter to Help Me?” Navigating Rights and Advocacy with Young Adult Patients (pp. 73-84)
Janis H. Arnold (Division of Gastroenterology and Nutrition, Boston Children’s Hospital, MA, US)

Resources

About the Authors

Index

This book was written for the Primary care provider (physician, physician assistant, nurse practitioner) who works with pediatric patients. However, pediatric specialists will find it extremely useful as well. Transition of care from pediatric to adult centered medical care has become a topic of intense interest in the last few years, and many publications describe the ideal process in generalities. However, there are few places for busy practitioners to turn for practical knowledge. This book is written for the post graduate medical faculty, whether in a private practice or academic setting. Professionals in related fields of occupational therapy, physical therapy, social work, psychology, nutrition, education, who work with children and adolescents will find this information useful as well.

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