Adolescence and Chronic Illness. A Public Health Concern

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Hatim Omar (Editor) – Kentucky Children’s Hospital, Lexington, KY
Donald E. Greydanus (Editor) – Michigan State University/Kalamazoo Center for Medical Studies, Kalamazoo, MI
Dilip R. Patel (Editor) – Michigan State University/Kalamazoo Center for Medical Studies, Kalamazoo, MI
Joav Merrick (Editor) – Div. of Mental Retardation, Ministry of Social Affairs, Jerusalem

Series: Health and Human Development

The prevalence of chronic illness or disability in adolescence has increased in recent years due to medical advances, and adolescents are now more than ever able to lead a productive life even in spite of serious illness. In the past, children with many diseases would not reach adolescence, but over the last decade or more the survival rate for children with cystic fibrosis, for spina bifida and congenital heart disease has increased. The old morbidity (infectious disease, poor housing, poverty, lack of immunisation) has been exchanged with the new morbidity of adolescence, where a longer life expectancy is followed by an increase in life-long disability. The concern in chronic illness include medical, psychological, physiological, biological, reproductive, cognitive and social aspects. Practitioners of the healing arts must become familiar with the most common disabilities likely to afflict children and adolescents so that appropriate evaluation, treatment, and management may occur. This book will cover a broad area of chronic illness in adolescence written by leading experts in this field.

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Table of Contents

Preface

I. INTRODUCTION

Adolescents, Chronic Disease and Disability;pp. 3-10
(Hatim A. Omar, Donald E. Greydanus, Dilip R. Patel and Joav Merrick)

II. INFECTIOUS DISEASE

Chapter 1. Infections in Adolescents with Disabilities;pp. 13-20
(Stephen K Obaro)

III. NEOPLASMS

Chapter 2. Adolescents with Cancer;pp. 23-31
(Renuka Gera, Elna N Saah, Ajovi B. Scott-Emuakpor and
Roshni Kulkarni)

IV. ENDOCRINE, NUTRITIONAL AND METABOLIC DISEASES

Chapter 3. Endocrine Aspects of Chronic Disease;pp. 35-49
(Manmohan K Kamboj)

Chapter 4. Endocrinological Aspects of Intellectual Disability;pp. 51-56
(Mohammed Morad, Efrat Merrick-Kenig and Joav Merrick)

Chapter 5. Metabolism and Disease;pp. 57-62
(Efrat Merrick-Kenig, Mohammed Morad and Joav Merrick)

V. DISEASES OF THE BLOOD

Chapter 6. Chronic Hematological Disorders;pp.65-80
(Elna N. Saah, Renuka Gera, Ajovi B. Scott-Emuakpor and Roshni Kulkarni)

Chapter 7. Severe Pain in Children with Sickle Cell Disease;pp. 81-95
(Eufemia Jacob, Marilyn Hockenberry, Brigitta U. Mueller,
Thomas D. Coates and Lonnie Zeltzer)

VI. MENTAL DISORDERS

Chapter 8. Mental Health and Chronic Disease;pp. 99-108
(Marlene B. Huff, Kimberly K. McClanahan and Hatim A. Omar)

Chapter 9. Psychiatric Issues in Chronically Ill Children, Adolescents, and Young Adults;pp. 109-121
(Joseph L. Calles)

Chapter 10. Eating Disorders and Therapeutic Health Outcome;pp. 123-149
(Bruce Kirkcaldy, Marlies Pinnow and Georg R. Siefen)

Chapter 11. Psychological Issues in Chronically Ill Adolescents;pp. 151-163
(Helen D. Pratt)

VII. NERVOUS SYSTEM

Chapter 12. Neurological Impairment and Disability;pp. 167-171
(Dilip R. Patel and Donald E. Greydanus)

Chapter 13. Youth with Chronic Pain;pp. 173-185
(Paula Forgeron and Patrick J. McGrath)

VIII. CIRCULATORY SYSTEM

Chapter 14. A Comprehensive Approach to Obesity, Hypertension, and
Mental Health Evaluation;pp. 189-200
(Stefan G. Kiessling, Kimberly K. McClanahan and Hatim A.Omar)

IX. RESPIRATORY SYSTEM

Chapter 15. Pulmonary Disabilities in Adolescents;pp. 203-219
(Douglas N. Homnick

Chapter 16. Childhood Asthma Management and Control;pp. 221-232
(Frank Mo, Chris Robinson and Bernard C.K. Choi)

X. DIGESTIVE SYSTEM

Chapter 17. Nutrition and Gastroenterology Issues;pp. 235-244
(Arthur N. Feinberg, Lisa A. Feinberg and Orhan K. Atay)

XI. GENITOURINARY SYSTEM

Chapter 18. Chronic Kidney Disease;pp. 247-253
(Timothy E. Bunchman)

Chapter 19. Chronic Kidney Disease and Quality of Life;pp. 255-269
(Jane-Anne Smith and Stefan G. Kiessling)

XII. PREGNANCY AND SEXUALITY

Chapter 20. Pregnancy and Young Women with Disabilities;pp. 273-281
(Kathy Sheppard-Jones, Harold Kleinert, Cindy Paulding and
Christina Espinosa)

Chapter 21. Down Syndrome and Sexuality;pp. 283-290
(Maria José Carvalho Sant’Anna, Bruna Marques Bononi,
André Chao Vasconcellos de Oliveira, and et al.)

XIII. SKIN

Chapter 22. Acne Vulgaris and Adolescence;pp. 293-304
(Donald E. Greydanus and Dilip R. Patel)

XIV. MUSCULOSKELETAL SYSTEM

Chapter 23. Acute Musculoskeletal Sports Injury and Topical NSAID;pp. 307-310
(Amit M.Deokar, Shawn J. Smith and Hatim A.Omar)

Chapter 24. Chronic Disability from Hip Abnormalities in Adolescence;pp. 311-335
(Avinash L. Jadhav and Dale E. Rowe)

XV. GENETICS

Chapter 25. Intellectual Disability and Genetics;pp. 339-348
(Helga V. Toriello)

Chapter 26. Down Syndrome and Adolescence;pp. 349-356
(Efrat Merrick-Kenig, Joav Merrick and Isack Kandel)

Chapter 27. Rett Syndrome and Snoezelen or Controlled Multi-Sensory
Stimulation;pp. 357-365
(Meir Lotan and Joav Merrick)

XVI. PHYSICAL ACTIVITY AND SPORTS

Chapter 28. Sports and Adolescents with Disability;pp. 369-374
(Dilip R. Patel, Donald E. Greydanus)

Chapter 29. Sports Preparticipation Examination;pp. 375-382
(Donald E. Greydanus and Dilip R. Patel)

Chapter 30. Adolescents with Intellectual Disability and Physical Activity;pp. 383-393
(Meir Lotan and Joav Merrick)

XVII. DENTAL ASPECTS

Chapter 31. Dental Care Needs;pp. 397-400
(Joseph D’Ambrosio)

XVIII. TRANSITION

Chapter 32. Adolescents with Sickle Cell Disease and Transition to Adult Care;pp. 403-420
(Joseph Telfair, John E. Ehiri, Penny S. Loosier and Monica L. Baskin)

Chapter 33. The Transition of Care for Young People with Chronic Disease;pp. 421-430
(Katherine S. Steinbeck, Lynne Brodie and Susan J. Towns)

XIX. ACKNOWLEDGEMENTS

Chapter 34. About the Editors;pp. 433-434

Chapter 35. About the Division of Adolescent Medicine at the
University of Kentucky, Lexington, Kentucky, United States;pp. 435-436

Chapter 36. About the Department of Pediatrics and Human
Development, Michigan State University College of Human
Medicine, MSU/Kalamazoo Center for Medical studies,
Kalamazoo, Michigan, United States;pp. 437-439

Chapter 37. About the National Institute of Child Health and
Human Development in Israel;pp 441-443

X. INDEX pp.445-477

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